Learning to Live with Huntington's Disease: One Family's Story

Learning to Live with Huntington's Disease: One Family's Story
- Used Book in Good Condition
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.
Country USA
Brand Jessica Kingsley Publishers
Manufacturer Jessica Kingsley Publishers
Binding Paperback
ItemPartNumber Illustrated
ReleaseDate 2007-04-15
UnitCount 1
Format Illustrated
EANs 9781843104872

Country	USA
Brand	Jessica Kingsley Publishers
Manufacturer	Jessica Kingsley Publishers
Binding	Paperback
ItemPartNumber	Illustrated
ReleaseDate	2007-04-15
UnitCount	1
Format	Illustrated
EANs	9781843104872

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